Every family has power.
“I wrote Against All Odds because I want to share what our family learned in our fight for our mother’s health care. I’d like this site to be a resource for those involved with health care, elder care and patient advocacy; anyone who is a patient or caregiver; those interested in improving the quality of our healthcare system; anyone seeking encouragement, inspiration and hope in their fight for patient-centered care.
YOU ARE NOT ALONE.”
– Ruth A. Tarantine, DNP, RN
Healthcare Against All Odds
The Story of One Family’s Fight for Their Mother’s Survival
in Our Broken Health Care System
When their mother faced a serious health challenge, the Tarantine family discovered that the U.S. health care system is broken—and even dangerous. Over a 30-month period, the Tarantines navigated multiple facilities and systems, determined to give their mother care that suited her needs rather than those of the providers. Against all odds, Ruth E. Tarantine became the first person in the state of Pennsylvania to receive home hemodialysis with a tracheostomy and ventilator. She would have periodic hospital admissions, but at one point in her 2 1/2-year journey, Ruth was home and out of the hospital for 15 consecutive months. Ruth’s family was able to give her the highest possible quality of life—according to her definition. Their story offers inspiration, hope and practical advice for anyone involved in health care.
Patient-Centered Care vs Provider-Centered Care
“Nothing about me without me.”
Patient-centered care involves the patient in the planning and implementation of their care. The only thing that matters is the patient and his or her wishes. Health care providers have the job of facilitating the patient’s wishes. In the U.S., longstanding practice has been that a patient who enters a health care facility gives up control. This book can help change that.